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CEN/ISO 13606 in use PDF Print

This section shows how the CEN/ISO 13606 standard is being used all over the world at different public and private projects and deployments. This is just a small view on the possibilities and benefits of this standard

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Experiences

 


Project name:

PITeS: Methods and tools for the design and implementation of telemedicine and eHealth services for Chronic Patients Care
Country: Spain
Executers:
  • Carlos III Health Institute’s telemedicine and eHealth unit
  • “Virgen del Rocío” University Hospital (VRUH)
  • Hospital Clínic de Barcelona
  • Albacete Primare Care
  • Barbastro Hospital
  • C. M. T. Pamplona
  • Puerta del Hierro Hospital.
Webpage: NA
Description:
PITeS is a coordinated project where VRUH participates as one of the nodes. This node has developed a platform whose data model satisfies the ISO13606 standard specifications. The concepts have been mapped by archetypes, using the editing archetypes tool: LinkEHR. In this platform are covered two scenarios:
  • Multi-pathological patients. Given that different healthcare levels (Primary Care, Specialised Care and Home Care) participate in the care of multi-pathological patients, it is required to facilitate the communication and coordination among professionals. We have created a social network tool called “Clinical Wall”.
  • Headache patients. In order to minimise the demand of specialized care needed by these patients, another eService that allows the communication through videoconferencing among general practitioners and specialists will be required.
References:
[1] Alicia Martínez García, Alberto Moreno Conde, Carlos Parra Calderón, Francisco Javier Galindo Ocaña, Manuel Ollero Baturone. Clinical Wall applied for Polypathological Patient Care. eTELEMED 2012: The Fourth International Conference on eHealth, Telemedicine, and Social Medicine. January 30 - February 4, 2012 - Valencia, Spain.

[2] Ortiz Camúñez MA, Rodríguez Pappalardo V, Bohórquez Colombo P, Nieto Martín D, Martínez García A y Ollero Baturone M. DESARROLLO DE UN PROYECTO DE TELEMEDICINA PARA LA ATENCIÓN A PACIENTES PLURIPATOLÓGICOS. IV Congreso Nacional de Atención Sanitaria al Paciente Crónico. Auditorio de la Diputación de Alicante (ADDA). 8, 9 y 10 de Marzo 2012.

[3] MARTÍNEZ-GARCÍA, C.L.PARRA-CALDERÓN, A.MORENO-CONDE, F.J.GALINDO-OCAÑA, V.RODRÍGUEZ-PAPPALARDO, M.OLLERO-BATURRONE, S.LEAL-GONZÁLEZ. MURO CLÍNICO APLICADO A LA ASISTENCIA DE PACIENTES PLURIPATOLÓGICOS. INFORSALUD 2012: XV Congreso Nacional de Informática de la Salud. Palacio de Congresos de Madrid, 20, 21 y 22 de Marzo.




Project name:

Prevensalud: Producing a smart health risks prevention system from distributed Electronic Health Records
Country: Spain
Executers:
  • REDSA.
  • “Virgen del Rocío” University Hospital (VRUH)
Webpage: NA
Description: Prevensalud is a project where we try to find solutions to enhance the Chronic Kidney Disease patients’ assistance. We have developed a platform with the aim of sharing information among the hospital and these private centres to allow the continuity of care. The data model satisfies the ISO13606 standard specifications, mapping the concepts using archetypes (we use the editing archetypes tool: LinkEHR). The process is defined based on IHE profiles, and the information exchange is defined using HL7 CDA.
References: [1] David Moner, Alberto Moreno, José A. Maldonado, Montserrat Robles, Carlos Parra.
Using Archetypes for Defining CDA Templates. Quality of life through quality of information, pp. 53-57, IOS Press BV, Amsterdam. ISBN 978-1-61499-100-7. August 2012.

[2] Alberto Moreno, Alicia Martinez, Francisco Nuñez, Carlos Parra. Testing a New CDA Development Strategy in a Standardized Infrastructure for Continuity of Care in Chronic Kidney Disease Patients. Standards and Solutions for eHealth Interoperability, European Journal of Biomedical Informatics (in press), Vienna (Austria), September 2012.




Project name:

HEDECAMA: Semantic model and Data Mining algorithms applied to the Breast Cancer treatment in Specialised Care centers
Country: Spain
Executers:
  • Álamo Consulting
  • BITAC
  • Alcalá University
  • Universitat Politècnica de València (UPV)
  • “Virgen del Rocío” University Hospital
Webpage: NA
Description: The main object for this project is to develop technological components and complementary computer applications in order to get a clinical decision support system for the breast cancer treatment in specialised care centers. In the project we are mapping the concepts using archetypes modelled following the ISO13606 standard data model, and we will interchange the archetypes making use of a repository. We have designed a structured register to include all the concepts that the breast specialists need, and this register is about to be implemented.
References: [1] Ricardo Gonzalez Otal, Jose Luis Lopez Guerra, Carlos Luis Parra Calderon, Alberto Moreno Conde, Maria Jose Ortiz Gordillo. Computerized decision support systems for breast cancer management: project design. Future Technology Publications, Vol. 2 No. 1, September 2012.

[2] J. L. López Guerra, R. González Otal, C. L. Parra Calderón, A. Martínez García, V. Suarez Gironzini, J. Peinado Serrano, A. Moreno Conde y M. J. Ortiz Gordillo. APLICACIÓN DE INTELIGENCIA ARTIFICIAL EN LA CLASIFICACIÓN POR TAMAÑO TUMORAL EN CÁNCER DE MAMA. XXXI Congreso de la SESPM y VII Reunión SETS, Barcelona, Spain, October 2012.




Project name:

LinkEHR Normalisation Platform
Country: Spain
Executers:
  • Universitat Politècnica de València (UPV)
Webpage: www.linkehr.com
Description:
The LinkEHR Normalization Platform allows creating a normalized, virtual and federated view of the EHR of a patient whose data are distributed among heterogeneous information systems in three basic steps.
  • Data integration. LinkEHR Integration Engine gains access to your data sources and documents and integrates them in a virtual view built on-the fly. It assures the highest degree of security and privacy for medical data.
  • Data normalization. LinkEHR Editor and LinkEHR Studio help you to automatically transform existing data into standard documents, including CEN/ISO 13606, or into your own proprietary format. This process is done through the use of archetypes for defining clinical concepts and for binding to the original data sources where data is located. The tool will automatically generate a program to transform data from legacy to normalized formats.
  • Data sharing. LinkEHR Extract Server and LinkEHR Viewer allow you to share and visualize medical data in a completely personalized way. The Extract Server implements the CEN/ISO 13606 part 5 interface for communication of HER extracts and offers a set of web services that can be used by external systems, under strict security rules, and the Viewer provides a friendly interface for clinical users to search and review clinical data.
References: [1] José Alberto Maldonado Segura; CATALINA MARTÍNEZ COSTA; David Moner Cano; MARCOS MENÁRGUEZ TORTOSA; Diego Boscá Tomás; Jose Antonio Miñarro Giménez; JESUALDO FERNÁNDEZ BREIS; Monserrat Robles Viejo. Using the ResearchEHR platform to facilitate the practical application of the EHR standards. Journal of Biomedical Informatics.45,pp. 746 - 762.2012.ISSN 1532-0464

[2] José Alberto Maldonado, David Moner, Diego Boscá, Carlos Angulo, Luis Marco, Ernesto Reig, Montserrat Robles: Concept-Based Exchange of Healthcare Information: The LinkEHR Approach. HISB 2011: 150-157

[3] José Alberto Maldonado, David Moner, Diego Boscá, Jesualdo Tomás Fernández-Breis, Carlos Angulo, Montserrat Robles: LinkEHR-Ed: A multi-reference model archetype editor based on formal semantics. I. J. Medical Informatics 78(8): 559-570 (2009)

[4] Moner Cano, D.; Maldonado Segura, J.A.; Fernández Breis, J.T.; Angulo Fernández, C.; Crespo Molina, P.; Vivancos Vicente, P.J.; Robles Viejo, M.: Archetype-Based Semantic Integration and Standardization of Clinical Data. 28th Anual International Conference IEEE Engineering in Medicine and Biology (CMBD 2006), New York, Aug. 2006




Project name:

EHRflex
Country: Spain
Executers:
  • Universitat Politècnica de València (UPV)
  • Helmholtz Zentrum München
Webpage: http://ehrflex.sourceforge.net/
Description: EHRflex is a generic, open source system based on archetypes for the construction of a web-based electronic medical record. It empowers the clinician and allows him to manage his own EMR system in a simple and formal basis, by assuring that the user works with underlying standardized data structures based on the CEN/ISO 13606 standard. These structures are defined in the form of archetypes, so that the can be updated and improved whenever is needed, or even they can be exchanged with other people and systems. EHRflex introduces EHR standards into the clinical routine delivering a technical platform which works directly on archetype based data.
References: [1] Anton Brass, David Moner, Claudia Hildebrand, Montserrat Robles. “Standardized and flexible health data Management with an archetype driven EHR system (EHRflex)”. Seamless care – Safe care: The Challenges of Interoperability and Patient Safety in Health Care. Proceedings of the EFMI Special Topic Conference, pp. 212-218. IOS Press BV, Amsterdam. ISBN: 978-1-60750-562-4, 2010.

[2] Anton Brass, David Moner, Claudia Hildebrand, Montserrat Robles. “Health Data Management with an Archetype Driven EHR System in Low Ressource Environments (EHRFlex)”. Med-e-Tel. The International eHealth telemedicine and health ICT forum, Global Telemedicine and eHealth Updates: Knowledge Resources, Vol. 3, pp. 137-140, ISSN: 1998-55, 2010




Project name:

HSEAVS: Valencia Health Agency Electronic Health Record
Country: Spain
Executers:
  • Agència Valenciana de Salut
  • Universitat Politècnica de València (UPV)
  • Novasoft
  • everis
Webpage: NA
Description: The Valencia Health Agency Electronic Health Record project (HSEAVS) is new generation EHR that is being developed by the Valencia Region in Spain. Its objective is to maintain a summary of all clinically relevant information of patients of the region (over 5 million people). This system will support the construction of patient summaries, but also will support clinical research based on data of all population.
The HSEAVS project consist in five main pieces
  • HSEAVS data repository. Based on CEN/ISO 13606 and guided by archetypes, it will store and manage all the clinical information of patients.
  • HSEAVS concept repository. It will store and manage the definitions of clinical concepts and data structures used by all the HSE project, including not only CEN/ISO 13606 archetypes but also CDA archetypes and informal definitions of concepts (implementation guides, excel files…).
  • HSEAVS document repository. It will store complete documents (HL7 CDA, PDF, Word, or others that have not been normalised) and will provide them through an IHE XDS interface.
  • HSEAVS terminology server. It will be in charge of the management of all terminologies used in the HSEAVS, their lifecycle and mappings between them and with local terminologies.
  • HSEAVS OID server. It will provide unique identifiers for all resources used.
References: NA




Project name:

Standardised CEN/ISO 13606 patient summary for medicines reconciliation
Country: Spain
Executers:
  • Hospital Universitario de Fuenlabrada
  • Universitat Politècnica de València (UPV)
Webpage: NA
Description: Medicines reconciliation is a key process to improve health, welfare and patient security. It is also recognized that semantically interoperable systems based on the use of health standards is an adequate strategy to achieve a reliable medicines conciliation process. This project built a standard-based solution for medicines reconciliation at the Hospital de Fuenlabrada in Madrid. It is based on the use of a CEN/ISO 13606 based patient summary that is shared between primary care and the hospital centre. The 13606 norm and archetypes were used to achieve the semantic interoperability of the clinical information together with SNOMED CT and the Spanish National Medication Database. This approach has showed that it is feasible to achieve a patient security improvement in an innovative and collaborative way.
References
References: [1] David Moner, Marta Terrón, Carlos Angulo, Luis Lechuga, Pablo Serrano, José Alberto Maldonado, Francisco J. Farfán, Montserrat Robles. Implementation of a CEN/ISO 13606 platform for medicines reconciliation. XXIII International Conference of the European Federation for Medical Informatics (MIE 2011)




Project name:

Heartbeat: supporting cardiovascular shared care across north London
Country: United Kingdom
Executers:
  • University College London
  • Whittington Health
Webpage: https://heartbeat.chime.ucl.ac.uk/heartbeat/portal/first
Description: The UCL Centre for Health Informatics and Multiprofessional Education - CHIME - was established in 1995, as a joint initiative of UCL and the Whittington Hospital NHS Trust, founded on the principle that close contact with real health care requirements and experiences must underpin teaching and research. CHIME has become an internationally recognised, multidisciplinary centre with a common focus on research, education and technological innovation, linking information, quality and governance for health.

The EHR research group in CHIME have developed and deployed EHR systems that have informed and subsequently validated the ISO EN 13606 standard. They group collaborate with community cardiology services across north London, led from the Whittington NHS Trust. Web-based clinical applications have been developed on top of the EHR, for anticoagulation management rapid access chest pain services and heart failure. The  anticoagulant system, known as Heartbeat, was deployed in 2009 and is used by all of the hospitals, GPs and pharmacies across north London i.e. every patient on anticoagulation therapy in north London is managed using this shared EHR system. This amounted to 3,100 patients last year, with the number expected to grow to over 5,000 within the next two years.

The EHR and clinical applications are accompanied by a formal education and accreditation process for practitioners (doctors, pharmacists, nurses) and a well established governance process including audit that is informed by queries and report derived from the EHR system. Real-time clinical governance of quality measures show that most sites are maintaining satisfactory anticoagulation control metrics and some are improving year on year. The system has helped to demonstrate that community sites deliver safe and well regarded care. This service is an exemplar of a safe, informed and governed model for the distributed shared care of a long term condition, and is potentially generalisable to many others.

The group are presently developing a distributed stoke prevention service using the same model, underpinned by the same shared EHR system, and we are discussing nationally how these exemplars may be scaled up and inform national service models.

The system is just starting to be used for patients to manage their own anticoagulation.

A UCL spin out company has just been formed, through UCL Business, to market and support the national roll out of the anticoagulation and stroke prevention systems.
References: [1] Coleman B, Martin C, Barber N, Patterson D. An evaluation of the safety and acceptability of an anticoagulation clinic in a community pharmacy setting - a pilot study. Pharm J 2004;273:822-4.

[2] Austin,T., Sun,S., Lea,N., Iliffe,S., Kalra,D., Ingram,D., Patterson,D. (2009). Clinical Benefits of an Embedded Decision Support System in Anticoagulant Control. World Academy of Engineering, Science and Technology 53, 2009 1063-1069  ISSN: 2070-3724

[3] Austin T, Kalra D, Lea N, Patterson D, Ingram D (2009). Analysis of Clinical Record Data for Anticoagulation Management within an EHR System. The Open Medical Informatics Journal, 3, 54 - 64

[4] Austin T, Lim, Y, Nguyen D, Kalra D. (2011) Design of an Electronic Healthcare Record Server Based on Part 1 of ISO EN 13606. Journal of Healthcare Engineering, 2011 2 (2), 143–160. ISSN 1756-8250

[5] Potts, HWW, Keen, J, Denby, T, Featherstone, I, Patterson, D, Anderson, J, Blandford, A. (2011). Towards a better understanding of delivering e-health systems: a systematic review using the meta-narrative method and two case studies: NIHR Service Delivery and Organisation programme. HS&DR Project - 08/1602/131. HMSO 2011. Available from: http://www.netscc.ac.uk/hsdr/files/project/SDO_FR_08-1602-131_V01.pdf

[6] Coleman B. (2012) Requirements for a patient self monitoring service for oral anticoagulation. PhD Thesis. University of London




Project name:

EHR-Arche – Archetype based electronic health record
Country: Austria
Executers:
  • Institute for Health Information Systems, University for Health Sciences, Medical Informatics and Technology
  • Institute for Medical Information Management and Imaging, Medical University of Vienna
Webpage: http://www.meduniwien.ac.at/msi/arche/
Description: Today’s health care professionals can access an ever increasing amount of patient-related information and clinical knowledge, one of the most-promising applications being the Electronic Health Record (EHR). While several clinical and economic benefits are expected by the EHR, it may also lead to information overload, as the relevant information item that an EHR user searches for may be hidden in vast amounts of information within the lifelong EHR.
Therefore, we see an urgent need for supporting EHR users in selectively retrieving information that is relevant in their respective search context. Besides document meta-data, archetype-based dual-model EHR architectures propose a corresponding support, but it is unclear whether they fulfil this promise. Overall, it is unclear what the information needs of health care professionals are, and how to support them adequately by dual-model EHR architectures.

The objectives of this project are therefore
1.    to identify the information needs of health care professionals when accessing the EHR, considering the respective search context,
2.    to develop concepts to fulfil these information needs by combining document meta-data and dual-model EHR architectures,
3.    to evaluate the developed concepts in a trial implementation.

The project is innovative in the sense that information needs will be analysed (and not only information access patterns), and that we will propose concepts how to combine meta-data-based and archetype-based searching to optimize precision and recall of EHR queries. The concepts will be based on international standards such as IHE XDS to provide a future-proof, vendor independent solution. For the archetype-based search we will refer to the international EHR standard EN/ISO 13606 .

As a proof-of-concept we will focus on information needs in the treatment of patients suffering from diabetes. This focus was chosen as diabetes represents a chronic disease in which much information from different sources accumulates within the EHR over time, thus making the identification of the relevant information a challenging task.

The information needs analysis will be based on interviews and observation of clinical EHR users and the analysis of clinical guidelines. The resulting information needs patterns will then form the basis for the concept of a generic document crawler that will support EHR users in finding information efficiently. The trial implementation of the document crawler will be evaluated by assessing precision and recall of information retrieval within the EHR, combined with user satisfaction surveys and usability evaluations.

The outcome of the project will be a better knowledge of information needs of clinical EHR users – the initial scope of diabetes treatment can easily be expanded in follow-up projects - and a concept and a trial implementation of efficient EHR information retrieval techniques. We expect that our results will also influence the further development of parts of international standards such as IHE XDS.
References: [1] Hübner-Bloder G, Duftschmid G, Kohler M, Rinner C, Saboor S, Ammenwerth E. An EHR Prototype Using Structured ISO/EN 13606 Documents to Respond to Identified Clinical Information Needs of Diabetes Specialists: A Controlled Study on Feasibility and Impact. Accepted as full paper at AMIA 2012 Annual Symposium. November 2012, Chicago.

[2] Rinner C, Kohler M, Hübner-Bloder G, Saboor S, Ammenwerth E, Duftschmid G. Archetype based search in an IHE XDS environment. Proceedings of  Medical Informatics Europe (MIE2012), August 2012, Pisa. ISSN  0926-9630. pp. 631-635.

[3] Rinner C, Kohler M, Hübner-Bloder G, Saboor S, Ammenwerth E, Duftschmid G. EHR-ARCHE – Vermeidung EHR-bedingter Informationsüberflutung mittels des Zweimodell-Ansatzes. In: Schreier G, Hayn D, Hörbst A, Ammenwerth E (eds.): Proceedings of eHealth2012, 10.-11. May 2012, Vienna. pp. 95-100.

[4] Kohler M, Rinner C, Huebner-Bloder G, Saboor S, Ammenwerth A, Duftschmid G. The Archetype-Enabled EHR System ZK-ARCHE - Integrating the ISO/EN 13606 Standard and IHE XDS Profile. In: Moen A, Anderson SK, Aarts J, Hurlen P (Eds.): User-centred Networked Care: Proceedings of Medical Informatics Europe (MIE 2011), Oslo. ISSN 0926-9630. pp. 799-803.

[5] Huebner-Bloder G, Duftschmid G, Kohler M, Rinner C, Saboor S, Ammenwerth E. Clinical Situations and Information Needs of Physicians During Treatment of Diabetes Mellitus Patients: A Triangulation Study. In: Moen A, Anderson SK, Aarts J, Hurlen P (Eds.): User-centred Networked Care: Proceedings of Medical Informatics Europe (MIE 2011), Oslo. ISSN 0926-9630. pp. 369-373.

[6] Kohler M, Rinner C, Hübner-Bloder G, Saboor S, Ammenwerth E, Duftschmid G. Automatische Generierung von Formularen aus ISO/EN 13606 Archetypen zur Erzeugung Archetyp-konformer EHR-Extrakte, eHealth2011; 26.-27. May, Vienna, 2011, pp. 197-202. (Best PhD student paper award)

[7] Rinner C, Kohler M, Hübner-Bloder G, Saboor S, Ammenwerth E, Duftschmid G. Creating ISO/EN 13606 Archetypes based on Clinical Information Needs. EFMI STC 2011 Conference "e-Health Across Borders Without Boundaries", 14. - 15. April 2011, Lasko, Slovenia, pp. 43-49.

[8] Hübner-Bloder G, Duftschmid G, Kohler M, Rinner C, Saboor S, Ammenwerth E. Systematische Erhebung der Informationsbedürfnisse von Ärzten bei der Behandlung von Diabetes mellitus Patienten. In: Schmücker P, Ellsässer KH, Hayna S (Hrsg): 55. GMDS-Jahrestagung, 5. - 9. September 2010, Mannheim, pp. 332-334.




Project name:

Project for Electronic Health Record Services Deployment in Minas Gerais State
Country: Brazil
Executers:
  • Health Department of Minas Gerais State
  • PRODEMGE - IT Company of Minas Gerais State
  • Marcelo Rodrigues dos Santos (Independent Consultant)
Webpage: http:://sres.saude.mg.gov.br
Description: The State of Minas Gerais is the largest in the country in number of cities, totaling, according to the Brazilian Institute of Geography and Statistics (IBGE5), 853 cities. For delivering primary care services, the State has over 5000 healthcare units distributed among its cities, organized in 13 macro regions, within which there are 76 micro regions, according to information from the SES-MG. The government’s proposal is not to develop a single EHR system for the State to be imposed on the cities, conversely, it is to offer EHR Service that allows cities to use such service together with a State EHR System to be used by the smaller cities which have no conditions to buy it on their own, either because of the lack of resources or because of the lack of knowledge. From the 853 cities, 556 have less than 12.000 inhabitants.
The solution is based on the creation of a central repository and on the creation of a message infrastructure aiming at the interoperability of the existing EHR systems. The repository shall contain the demographic data and a clinical summary of the patients, necessary to support to the Family Health Program. The project also provides:
  • Connectivity infrastructure based on satellite to reach the most remote healthcare units;
  • Local IT infrastructure including microcomputers and LAN;
  • Training and Service Desk Support;
  • Knowledge artifacts web services;
  • Knowledge artifacts governance.
The cities, composed of several health units, will use their own choice of EHR system. The architecture must clearly establish the rules of data exchange so that the solutions access and provide data updates to the central repository, as well as prioritize the utilization of a controlled vocabulary.
References: NA




Project name:

Semantic Interoperability Server based on UNE-CEN ISO13606
Country: Spain
Executers:
  • Carlos III Health Institute telemedicine and e-Health research unit
Webpage: NA
Description: The Telemedicine and e-Health Research Unit of the Carlos III Health Institute of Madrid has developed a platform for the visualization and management of clinical extracts and archetypes compliant with the EN13606 standard; its main objective is to support other research groups, attending its mission as a public institution.

The platform consists of two main components, the extracts manager and the archetypes manager. The former is oriented to clinical extracts data visualization in its original .xml form and also in a graphic style that allows an intuitive understanding of exposed data; additionally this manager permits extracts storage, its validation using EN 13606 standard public schema and extracts retrieval in its original .xml format. The latter permits archetypes management: storage, retrieval and visualization in ADL format and in the friendlier component tree format.

This clinic interoperability platform can function under two different user roles: the public role permits clinical extracts visualization of fictitious patients and the visualization of a small set of archetypes stored in the system; and the research group role which can access data supplied by the group to the platform, i.e. real patients clinical extracts, and also the whole set of archetypes in the system.

Even though the platform is currently operative for some projects, it is not yet accessible to the general public since work is being carried out regarding the security of this aspect. Total access to the platform is expected to arrive soon, from the standpoint of public access and also to be accessed by the research groups requesting it.
References: NA




Project name:

ccML , a  new mark-up language designed to improve EN 13606-based Electronic Health Record extracts practical edition
Country: Spain
Executers:
  • Carlos III Health Institute telemedicine and e-Health research unit
Webpage: NA
Description: ccML (for context completion Markup Language) is a new XML-based mark-up language designed to allow Electronic Health Record (EHR) extracts practical edition. Approximately 70% of the information in EN 13606-based EHR extracts belongs to the medico-legal context. This means that if a healthcare professional were to introduce it manually when building a new extract (fragment) this task would become too slow and impractical. ccML permits to write files that complement the EN 13606 Reference Model (RM), without modifying it, so that an extracts Editor application using them is able to fill up the medico-legal context information in a controlled automatic way resulting in a much faster and safer extracts construction. The language thus renders interoperable EHR extracts edition by healthcare professionals into a practical and realistic task which can be performed everyday in hospitals and healthcare centers.
References: [1] Sánchez de Madariaga, R., Muñoz, A., Cáceres, J., Somolinos, R., Pascual, M., Martínez, I., Salvador, C.H., Monteagudo, J.L. 2012. ccML, a new markup language to improve ISO/EN 13606-based Electronic Health Record extracts practical edition. Journal of the American Medical Informatics Association (JAMIA). 2012;00:1–7. doi:10.1136/amiajnl-2011-000722




Project name:

Anonymizer System based on UNE-EN ISO13606
Country: Spain
Executers:
  • Hospital Universitario Puerta de Hierro Majadahonda
  • Carlos III Health Institute telemedicine and e-Health research unit
  • Hospital Universitario de Fuenlabrada
Webpage: NA
Description: The Bioengineering and Telemedicine Unit of the Hospital Universitario Puerta de Hierro Majadahonda has designed, developed and carried out an anonymizer system based on UNE-EN ISO 13606. The main goal of this system is to offer a tool for the anonymizing of the interchanged extracts among information systems. The anonymizer system removes the demographic information of the extract, after sending the demographic information to an associated demographic server. It also manages the required changes of identifiers to get a new extract without any links to demographic entities. So, the transmitter information system can send the new extract generated to the receiver information system for secondary use of clinical information without associated demographic data. This anonymizer system has been integrated successfully in a common project with Carlos III Health Institute telemedicine and e-Health research unit and Hospital Universitario de Fuenlabrada.
References: NA